Cheshire East Community JSNA Carers' Project Report 2018 - PDF Downloads
Question 1: How many carers need support and what are their characteristics?
Question 2 and 3 : What is the impact of the caring role on health and quality of life and what do carers need?
Question 4 : Current Service and assets (and what could we do better/gaps in services)
Question 5 : How well are the needs of the carers being met?
Gathering the views and experiences of carers in Cheshire East
The 2018 Cheshire East Council Carers JSNA can be found here.
The 'Caring for Carers' 2016-18 joint strategy between Cheshire East Council (CEC), South Cheshire Clinical Commissioning Group (SCCCG) and Eastern Cheshire Clinical Commissioning Group (ECCCG) were issued in early 2016. The carers Joint Strategic Needs Assessment (JSNA) is being developed to inform the refresh of this strategy and recommissioning of carer support services.
Adult Social Care undertook a ‘Caring for Others’ carers' survey in November 2016 on a random sample basis to gather the experiences of carers of adults who have had a carer assessment and/or received support via adult social care in the previous 12 months within Cheshire East. This survey classified a Carer as someone who, on an informal and unpaid basis, looked after a partner, family member or friend who was aged 18 or over, who was in need of support or services because of, frailty, physical or learning disability, or illness, including mental illness.
Following on from this survey, as part of the Carers JSNA work, the Community JSNA team at CVS was asked to undertake engagement work within the local community to gather views and experiences from carers of all ages who are accessing support from voluntary, community and faith sector organisations. These carers provide care to family members, friends or neighbours. This includes young carers and parents who support adult children.
How have you contributed?
We asked the following questions:
- Do you provide informal and unpaid care for family members, friends or neighbours?
- Do they need care because of frailty, physical or learning disability, autism condition, health condition or other illness, including mental illness?
We had two surveys available online and in paper format (these are now closed). One survey was created for adult carers aged 18+ and the other young person carer survey was aimed at those carers between 0 - 18 years.
We also held a number of focus groups and undertook many 1-2-1 conversations with carers of all ages, to try and reach as many carers as possible within the time we had available.
Thank you to all who took part.
If you would like to contact us about this work, please contact Suzanne Thomas on 01270 763100 or at firstname.lastname@example.org.
Carers' Project Methodology
Cheshire East Adult Social Care, along with all local authorities with adult social care responsibilities, undertook the ‘Survey of Adult Carers in England’ in November 2016 to gather the experiences of carers of adults. The survey used a random sample of carers, aged 18 or over, who had had a carer assessment, and/or received support via adult social care, in the previous 12 months within Cheshire East. This survey classified a carer as someone who, on an informal and unpaid basis, looked after a partner, family member or friend who was aged 18 or over, and who was in need of support or services because of frailty, physical or learning disability, or illness, including mental illness.
Following on from this survey, as part of the Carers JSNA work, the Community JSNA Team at CVS Cheshire East was asked to undertake engagement work within the local community to gather views and experiences from carers of all ages who are accessing support from Voluntary, Community and Faith Sector organisations.
The Carers' Project accessed and used data that was already available, for example, contract monitoring information and current reports, surveys and anecdotal evidence from VCFS providers. The project worked with two groups of service providers: those whose services were commissioned and other VCFS providers (including community and faith groups or networks). The groups worked with, provided support services for carers, whose cared for person had one or more of the following health conditions: autism spectrum condition; learning disabilities; physical ill health; mental ill health; substance misuse; dementia, and sensory impairment. The work also looked at protected characteristics including age, gender, ethnicity and religion.
An online survey was distributed to service-providers (commissioned and non-commissioned). The survey was publicised using the CVS database, direct email to identified carer support providers and via relevant events. Twenty-six responses were received.
An online survey was made available for carers within Cheshire East. Two versions of the survey were created - one for adult carers, and one for young carers. Eighty -six responses were received for the adult survey and 31 for the young carer survey.
Both surveys were publicised through a range of communication channels including:
- social media;
- radio interviews;
- carer engagement events;
- local community opportunities e.g. market days;
- Healthvoice (which reaches GP practices);
- Healthwatch engagement activities;
- service provider activities;
- using existing established communication networks within the region.
Paper copies with reply-paid envelopes were also made available.
Focus groups were held with adult carers at carer engagement events and also at various groups facilitated by the Alzheimer’s Society e.g. Dementia peer support groups and Singing for the Brain sessions (Crewe and Nantwich). Young carer focus groups were held at Cheshire Young Carer support group meetings at Middlewich and Crewe.
20 one-to-one interviews were undertaken as part of the process. These one-to-one conversations were mainly conducted over the telephone and were in response to carers providing their contact information at the end of the adult carer surveys.
In-depth interviews with main service providers were also undertaken and the interviews were recorded and transcribed.
Anonymised data on numbers and characteristics of carers known to or accessing services were collated from VCFS and council service providers and GP practice registers. This information was used to estimate how many carers may need support in Cheshire East and how many are accessing support. The analysis, including service reach maps for adult and young carers, are included in a Community JSNA report produced by Cheshire East Council’s Business Intelligence and Public Health teams.
Data and findings from the Cheshire East Council Adult Social Care survey from 2016 were also incorporated into the Community JSNA reports, as those findings represented a larger sample and were likely to be more representative.
The opportunities for improvement identified in the Community JSNA reports were discussed and agreed with commissioners of carer services. The reports form the basis of the Carers JSNA section which will be published on the JSNA website; www.cheshireeast.gov.uk/jsna
The service providers who have significantly contributed to this project are:
- Cheshire and Warrington Carer's Trust
- Carers Trust 4 All (includes young carer services)
- The Alzheimer's Society
- Cheshire Young Carers (includes young carer services)
- Central Cheshire Buddy Scheme
- Age UK Cheshire (Dementia Advice Service)
- Audlem District Community Action
- Space 4 Autism
- The Bridgend Centre
- British Red Cross
- Wishing Well
- Career Connect
- IRIS Vision
- Macclesfield Cancer Help Centre
- Macmillan Information and Support Centre
- The Neuromuscular Centre
- East Cheshire Hospice